This viewer contains all of our work in a citation list view. Each one has several 'tags' so that you may browse as you choose.
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  1. Milne, R., Sheehan M, Barnes B, Kapper J, Lea N, N’dow J, Singh G, Martín-Uranga A, Hughes N (2022) “A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks” Frontiers in Big Data
  2. Roberts, J., Milne, R., Morley K. and Middleton, A. (2022) “Opportunities for poaching: using the public’s enjoyment of popular culture to foster dialogues around genetics” Journal of Science Communication   
  3. GA4GH (2022) Public Attitudes for Genomic Policy Brief: Trust and Trustworthiness [online] blog Accessed: 23 Sept 2022
  4. Milne, R. and Patch, C. (2022) “Ethical challenges associated with pathogen and host genetics in infectious disease” The New Bioethics
  5. Graham, M., Milne, R., Fitzsimmons, P. and Sheehan, M.  (2022) “Trust and the Goldacre Review: Why Trusted Research Environments are Not About Trust” Journal of Medical Ethics
  6. Staunton C, McGrath V (2022) Perspectives of the Irish public on the use of their genetic data for research. A part of the Engagement & Society Research Seminar Webinar Series. 26 July. Online
  7. Pichini A, Ahmed A, Patch C, et al. (2022) Developing a National Newborn Genomes Program: An Approach Driven by Ethics, Engagement and Co-design. Frontier Genetics. Vol 13:866168
  8. Building a trustworthy national data research infrastructure: A UK-wide public dialogue (2022) DARE-UK, May
  9. Milne R, (2022) Digital detection of cognitive decline and the case of screening. P3MB Colloquium Meeting, University of Pennsylvania, May
  10. Costa A, and Milne R (2022) “Understanding ‘Passivity’ in Digital Health through Imaginaries and Experiences of Coronavirus Disease 2019 Contact Tracing Apps.”Big Data & Society 9, no. 1 (January 1, 2022)
  11. Ethics and Governance Framework (2022) Our Future Health. 
  12. Middleton A, Parry V, Borra J et al (2022) A public backlash towards genomics is a risk all of us working in genomics must share. The Lancet Regional Health - Europe [Online] vol. 15, article 100347. Available at: [Accessed : 1 Apil 2022]
  13. Hasan Q, Sahoo S (2022). The Role of Awareness in DNA Data Sharing and Public Opinion in India — Challenges Observed. A part of the Engagement & Society Research Seminar Webinar Series. 30 March. Online
  14. Peter M, Hammond J, Sanderson SC, Patch C et al (2022) Participant experiences of genome sequencing for rare diseases in the 100,000 Genomes Project: a mixed methods study. European Journal of Human Genetics. Vol 30, pp. 604–10
  15. Milne R (2022) The Language of Genomes: Genomic science, ethics and the public. UCL Genetics Society, March
  16. Milne R (2022) What can data trusts learn from the biobanking experience? Invited panellist for Cambridge Data Trusts Initiative workshop, March
  17. Atutornu J, Milne R, Costa A, Patch C, Middleton A (2022) Towards equitable and trustworthy genomics research. eBioMedicine [Online] vol. 76 Available at: [Accessed: 15 February 2022]
  18. Milne R, Morley KI, Almarri MA ...Atutornu J, Costa A, Howard HC, Patch C, Robarts L, Roberts J, Middleton A et al (2022) Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries. Genetics in Research [Online]  1-10. Available at: [Accessed: 4 February 2022]
  19. Newborn Genomes Programme (2022) Genomics England
  20. Milne R (2022) Dementia: risks, diagnosis and prevention. Mind Over Chatter, episode 3 [online] podcast, University of Cambridge Accessed: 22 Sept 2022
  21. Holmes C (2022) Exploring race, diversity and genomics. [Blog] Wellcome Sanger Institute Blog. [Online] 27th January. Available at:     [Accessed: 27 January 2022]
  22. Government Office for Science (2022). Genomics Beyond Health: What could genomics mean for wider government? Project Report Jamnuary 2022. Foresight, pp. 171
  23. Saunders, S., Ritchie, C., Russ, T., Muniz-Terreira, G. and Milne, R. (2022) "Assessing and disclosing test results for ‘Mild Cognitive Impairment’: The Perspective of Old Age Psychiatrists in Scotland" BMC Geriatrics
  24. Chavarría-Soley G, Raventós H (2022). The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation. A part of the Engagement & Society Research Seminar Webinar Series. 12 January. Online
  25. Milne, R., Costa, A. and Brenman, N. (2022) “Digital phenotyping and the (data) shadow of Alzheimer’s disease” Big Data and Society
  26. India Education Diary (2022) University Of Cambridge: New Centre To Foster Global Conversations About Ethical Issues Raised By Science [online] Available at: [Accessed 12 April 2022]
  27. Supporting health innovation with fair information practice principles (2022) OECD
  28. Cambridge Independent (2021) New Kavli Centre for Ethics, Science, and the Public at University of Cambridge will explore ethical implications of scientific discovery [Online] Available at: [Accessed 28 January 2022]
  29. Cambridge Network (2021) New centre to foster global conversations about ethical issues raised by science. [Online] Available at: [Accessed 12 January 2022]