This viewer contains all of our work in a citation list view. Each one has several 'tags' so that you may browse as you choose.
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  1. Milne R, Sorbie A, Dixon-Woods M, (2021) What can data trusts for health research learn from participatory governance in biobanks. Journal of Medical Ethics. Published Online First: 19 March 2021. doi:10.1136/medethics-2020-107020
  2. Middleton A, (2021) Master multi-stakeholder collaboration, and it will be possible for the EU to master genomic data sharing. EU Reporter Online. Available at: Accessed 15 March 2021.
  3. Middleton A (2021) Your DNA Your Say. 9th Presidency European Personalised Medicine Alliance Conference. 8th May, virtual
  4. Tutty E, Hickerton C, Terrill B, Middleton A (2021) The expectations and realities of nutrigenomic testing in Australia: A qualitative study on-line.  Available at:
  5. J. Hammond, I. Garner, M. Hill, C. Patch, et al., Animation or leaflet: Does it make a difference when educating young people about genome sequencing?, Patient Educ Couns,
  6. Chavarria-Soley G, Francis-Cartin F, Jimenez-Gonzalez F, Ávila-Aguirre A, Castro-Gozez MJ, Robarts L, Middleton A, Raventós H (2021) Attitudes of Costa Rican individuals towards donation of personal genetic data for research. Personalized Medicine. Published online ahead of print, 12 February. Available at:   [Accessed: 15 February 2021]
  7. Archer L (2021). Engaging young people with STEM: A Science Capital approach. Invited speaker as a part of the Society and Ethics Research Seminar Webinar Series. 8 February. Online
  8. Middleton A (2020). Genetic counselling in the future - what are the challenges and what are the existing opportunities. Delivered lecture  on the Genomic Practice for Genetic Counsellors course. Advanced Courses and Scientific Conferences, Wellcome Connecting Science, online, 4 February.
  9. Wigley, Chris (2021). Prof Anna Middleton: Starting genomic conversations with X-Men [The G Word: Genetics England Podcast] Season 1, episode 4, 3rd February. Available at:   [accessed: 19 February]
  10. Milne R, Costa A (2021) Covid, Cognition and the Spaces of Digital Health. Part of the series Health, Medicine and Agency, 19th January, Centre for Research in the Arts, Social Sciences and Humanities (CRASSH) of Cambridge University, online
  11. Roberts J (2020) Genetics and genomics on screen. [Blog] Genomics Education Programme, Health Education England. [Online] 21 December. Available at:   [Accessed: 22 December 2020]
  12. Milne R (2020) Dementia Prediction and Risk Reduction: Socio-cultural Insights, Ethical Reflections and Future Developments. Socio-cultural Insights, Ethical Reflections and Future Developments International Online Symposium, 7th December, University Medical Center Göttingen (UMG), Germany in cooperation with University of Haifa, Israel with funding from the German-Israeli Foundation for Scientific Research and Development (GIF), online
  13. Milne R (2020) Are we ready to fail? Speculation and ‘soft’ failure in Alzheimer’s disease drug development. Part of the Medical Anthropology Webinar Series, 2nd December,  London School of Hygiene and Tropical Medicine, online
  14. Roberts, J (2020). Empowering People [exhibit/stand]. Exhibited at RAREfest2020, 28 November 2020 (online)
  15. Middleton A, Robarts L (2020). Voices of Genetic Counsellors: So Much More Than Just a Test [poster/film]. Exhibited at RAREfest2020, 28 November 2020 (online)
  16. Middleton A et al (2020). Music of Life: What is a Gene [poster/film]. Exhibited at RAREfest2020, 28 November 2020 (online)
  17. Middleton A (2020) Delivered lecture on the Molecular Pathology and Diagnosis of Cancer course. Advanced Courses and Scientific Conferences, Connecting Science, Wellcome Genome Campus. online, 26 November
  18. Milne R (2020) Public perspectives on the donation and sharing of genomic and health information: findings of a global study. Part of the Digital Health webinar series, 24th November,  4th annual meeting of the ÖPPM (Österreichische Plattform Für Personalisierte Meizin in Austria), online
  19. de Wert G, Dondorp W, Clarke A.... Howard H, Patch C, et al. (2020) Opportunistic genomic screening. Recommendations of the European Society of Human Genetics. European Journal of Human Genetics [Online]. Available at:   [Accessed: 3 December 2020]
  20. Lewis C, Hammon J, Hill M, Searle B, Hunter A, Patch C, Chitty LS, Sanderson SC (2020) Young people's understanding, attitudes and involvement in decision-making about genome sequencing for rare diseases: A qualitative study with participants in the UK 100, 000 Genomes Project. European Journal of Medical Genetics, vol. 63, issue 11, November
  21. Imagine Science Film Festival (2020) Voices of Genetic Counsellors - So Much More Than Just a Test. New York, USA (On-line). 16-23 October
  22. Milne R, Costa A (2020) Ethical challenges associated with the digital detection of dementia. In:  30th Alzheimer Europe Conference, Dementia in a Changing World. Online. 22 October
  23. Middleton A (2020) Invited presentation on Your DNA Your Say: Million Genome Stakeholder Coordination Framework meeting as part of the ‘Stronger’ European Health Union. 21 October
  24. The Cosmic Shambles Network (2020) Genetics Shambles: The Ethics of Genetics. [web video] 21st October. Available at: [Accessed: 23 October 2020]
  25. GenomeWeb, (2020) And After the Test. [online] 19th October Available at:  [Accessed 29 October 2020]
  26. Patch C, Middleton A (2020) As genomic testing increases, it is time to focus on post test care for patients. [Blog] The BMJ Opinion. [Online] 16 October. Available at:  [Accessed: 29 October 2020]
  27. Patch C, Middleton A (2020) As genomic testing increases, it is time to focus on post test care for patients. the BMJ Opinion [Online] Available at: [Accessed: 16 October 2020]
  28. Segerdahl P. (2020) Delning av stora genomiska datamängder kräver vidsynt forskningskommunikation. [Blog] Etikbloggen: En forskningsblogg från Centrum för forsknings- & bioetik (CRB), Uppsala Universitet. [Online] 14th October. Available at: [Accessed: 29 October 2020]
  29. Segerdahl P. (2020) Global sharing of genomic data requires perspicuous research communication. [Blog] The Ethics Blog: A blog from the Centre for Research Ethics & Bioethics (CRB), Uppsala Universitet. [Online] 14th October. Available at: [Accessed: 29 October 2020]
  30. Milne R, Robillard J, Fisk J (2020) Working with and learning from participants in ELSI: The experience of the European Prevention of Alzheimer’s Dementia project. In: ELSI Conference, Working together to end dementia. Online. 13 October