Patient Involvement in Research
25th March 2022
Alessia partnered with Vera Frankova and Marie Pritchard for this talk about patient involvement in reserach at EURORDIS Winter School on scientific innovation and translational research for Rare Diseases
The EURORDIS Open Academy empowers patient advocates with knowledge and skills to take part in patient engagement roles side-by-side with all stakeholders and to advocate for rare diseases on a European and national level.
Trainings are delivered in English in a blended format, comprising e-learning modules, pre-training webinars and face-to-face/online intensive days. Our offer is composed of various schools, for EURORDIS members, and e-learning courses are open to anyone to take on this website