Genomics Requires Greater Public Trust in Data Sharing, Researchers Say
6th October 2020
Excerpt from article:
“We have now reached a point in society that it is urgent that people know what is happening in genomic research and how data is shared so that they can have a voice in policy and governance around this,” said lead author Dr. Anna Middleton of the Society and Ethics Research Group at Connecting Science in Cambridge, U.K.
“Public audiences across the world don’t know what genomics is, and when people aren’t familiar, they are more likely to mistrust it,” she told Reuters Health by email. “The genomics community needs to do much more to authentically communicate what they do and why so that genomic research is done within a partnership with society. Trust and trustworthiness is at the heart of this.”