We need to talk about big data and genomics. Here’s why – and how

27th July 2020

Excerpt from blog article:

– Genomics is emerging as a key source of data in healthcare.

– The benefits could be enormous – but we need to have a conversation about the risks and rewards, with society at its heart.

– It’s up to the experts to begin this dialogue, and they should start right away.

In an age when most of us have personal data in the digital ether, consent, privacy and protection still remain grey areas. Many of us give away or share our data, often without realising to what extent we are doing so. Even if it is explicit in the terms and conditions, how many of us can claim to read these fully? So can we really be sure our data is being handled carefully?

• Link to the original blog on the World Economic Forum website

Middleton A, Machirori M, Mabuka-Maroa J et al (2020) We need to talk about big data and genomics. Here's why – and how [Blog] World Economic Forum [Online] Available at: https://www.weforum.org/agenda/2020/07/why-we-need-a-public-conversation-about-big-data-and-genomics [Accessed: 25 September 2020]