‘Your DNA, Your Say’ – a global public attitudes study on genomic data sharing
26th May 2021
The Society and Ethics Research Seminar Series will focus on the global ‘Your DNA, Your Say’ study over the latter half of 2021 and into 2022. Anna Middleton gave the first in a series of seminars on the study, future seminars will be delivered by our international collaborators, focusing on the data from their respective arm of the project.
Your DNA, Your Say project summary:
How do people feel about their genomic data being incorporated into Big Data? This project aims to find out. The ‘Your DNA, Your Say’ project is a global online survey gathering public attitudes towards genomic data sharing. The survey contains 9 innovative films that explain what genomic data sharing is through the eyes of a little boy called Charlie. The findings will offer a public voice to policy created by the Global Alliance for Genomics and Health.
The English survey and films have been translated into Polish, French, German, Russian, Arabic, Swedish, Icelandic, Portuguese, Italian, Japanese, Mandarin, Spanish, Hindustani, Twi & Ewe. Social Scientists around the world collaborating on the project have led on the translations, recruitment, data collection and data analysis in the different languages.
Watch the full seminar here: