From Genetic Counselling, Ethics, Nursing, Society

Research use of clinical (genomic) data: Experiences of Genomics England/NHS and Australian Genomics

Along with Clara Gaff, Chris presented during the 2019 National Initiatives Meeting, co-hosted by Australia Genomics, GA4GH and Genomics England at the Wellcome Trust in London

Research use of clinical (genomic) data: Experiences of Genomics England/NHS and Australian Genomics

2nd May 2019

Chris and Clara Gaff’s talk was a part of the Regulatory and Ethics Breakout Summary. Also presenting were Bartha Knoppers, Tiffany Boughwood and Madeleine Murtagh

From the event website:

Summary

Leadership from national initiatives around the globe convened in May 2019 to enable knowledge exchange and collaboration among our initiatives as we pursue common goals in advancing human health.

Goals

Present progress and challenges in genomic and clinical data collection, use, and sharing

Discuss technical, regulatory, clinical, and educational practices, challenges, and opportunities

Review progress from the Global Alliance for Genomics and Health (GA4GH) in facilitating and enabling genomic and clinical data-sharing internationally.


Downloads:

Citation:

Patch C, Gaff C (2019). 'Research use of clinical (genomic) data: Experiences of Genomics England/NHS and Australian Genomics.' 2019 National Initiatives Meeting. London, UK, 3rd May.