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The 10th European Conference on Rare Diseases & Orphan Products

Chris was on the programme committee of the for the 2020 edition of this Rare Disease conference

The 10th European Conference on Rare Diseases & Orphan Products

14th May 2020

Conference description (from the ECRD website):

The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators. The conference was held virtually due to Covid-19 social distancing restrictions.

From the conference organisers:

“Over 1500 people registered for the conference (more than ever before), representing many different stakeholder groups including over 750 patients/patient advocates, over 200 healthcare industry professionals, over 250 ERN/Academics/Healthcare Professionals and over 130 Payer body/ HTA agency/ regulator / policy makers”

If anyone missed the session or would like to re-watch it they can do so at:


Related Link:


Eurordis Rare Diseases Europe (2020), The 10th European Conference on Rare Diseases & Orphan Products, 14 - 15 May. Online.