Public Attitudes for Genomic Policy Brief: Trust and Trustworthiness
31st August 2022
This guest blog post launches the start of a new series on Public Attitudes for Genomic Policy. This subgroup aims to disseminate the findings from the Your DNA Your Say study and other public attitudes studies into a series of blog posts and accompanying infographics. Touching upon a range of themes, these will inform the Global Alliance for Genomics and Health and external audiences on public attitudes towards genomic research and how policy and research should be designed to address these views.
What is trust and why is it needed?
Genomics research has great potential to contribute to improved human health for all by adding to our understanding of the complexities of the human genome and leading to improved diagnosis, treatments, personalized medicine and public health. The success of genomics relies on (1) access to large and diverse sets of individuals’ genomic and health data, and (2) the ability to share this data with other researchers in some form – potentially internationally. However, in making genomic and other health information available, individuals and communities may become vulnerable to the misuse of these data – whether intentional or not.