The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation
12th January 2022
We were honoured to host Gabriela Chavarría-Soley and Henriette Raventós for the fifth installment of our SER Seminar Series focusing on findings from the Your DNA, Your Say study
The Your DNA, Your Say global survey explores the attitudes of individuals regarding genomic data sharing for research, which allows comparisons on how these views vary between regions of the world and countries. Gabriela Chavarría-Soley and Henriette Raventós are researchers at the University of Costa Rica. Their work has focused on identifying genetic risk variants for severe mental disorders in Costa Rica. In this seminar, they describe their two-decade experience with participants in genetic studies in light of the Your DNA, Your Say results for the country. They focus on how the willingness to share genomic data depends on the later use of the data, and on who the most trusted persons with this information are. Preliminary patterns seen in Latin American countries as a group are also discussed. Additionally, they present recent qualitative results regarding beliefs and practices in the area of genetics of mental disorders in a group of social actors in Costa Rica. The implication of these findings for the historical underrepresentation of Latin populations in genomic studies is also discussed.
Watch the full seminar here: