Trust and trustworthiness in genomic data sharing

Who do we trust with genomic data about us, and what might we do to build trust? Richard Milne presented what we've learned from the global Your DNA, Your Say survey in the second instalment of a webinar series focusing on the study.
21st July 2021

The Society and Ethics Research Seminar Series will focus on the global 'Your DNA, Your Say' study over the latter half of 2021 and into 2022. Richard Milne gave the second in a series of seminars on the study, future seminars will be delivered by our international collaborators, focusing on the data from their respective arm of the project.

The development of genomic medicine relies on the willingness of individuals around the world to make data about themselves available to researchers and clinicians. Trust in these researchers and clinicians is thus an important factor in shaping the success of genomics initiatives. In this seminar, Dr Richard Milne, Senior Social Scientist in the Society and Ethics Research Group at Wellcome Connecting Science, discussed what we have learned from the Your DNA, Your Say study about public trust and how it is distributed across the 22 countries of the study. Richard also discussed recent work in which we explore the characteristics associated with trustworthy data users.

Richard is also a Senior Visiting Research Fellow in the Department of Public Health and Primary Care at the University of Cambridge. His research focuses on social and ethical questions associated with the development of medical technologies, particularly related to Alzheimer’s disease and biodata.

Watch the full seminar here:

Click here to open a new window to our Vimeo page, where this video can be downloaded.

Downloads:

Citation:

Milne R (2021). Trust and trustworthiness in genomic data sharing. A part of the Society and Ethics Research Seminar Webinar Series. 21 July. Online