The Role of Awareness in DNA Data Sharing and Public Opinion in India — Challenges Observed

How essential is “awareness” of DNA for having trust in sharing DNA data? Dr Qurratulain Annie Hasan of the Department of Genetics, Kamineni Hospitals in Hyderabad, India and Swayamsiddha Sahoo discuss findings from the Indian arm of the Your DNA, Your Say study.
30th March 2022

We were honoured to host Annie Hasan and Swayamsiddha Sahoo for the sixth installment of our Engagement & Society Seminar Series focusing on findings from the Your DNA, Your Say study

The foundation of the study ‘Your DNA, Your Say’ rests on the willingness of individuals around the world to share data about themselves which is then made available to clinicians and researchers and society at large for health care. Trust is an important factor in sharing DNA information. However, during analysis of Indian data, it was evident that people’s awareness about DNA has to be assessed before we can establish their willingness to donate.

In this seminar Dr. Qurratulain (Annie) Hasan, Sr. Consultant & HOD, Research Director at the Department of Genetics and Molecular Medicine, Kamineni Hospitals, Hyderabad, India along with Swayamsiddha Sahoo, Research Trainee under Dr. Hasan, who has completed her MA in Public Policy and Governance from Tata Institute of Social Sciences, Hyderabad, India; discuss their methodology and findings. They also elaborate on how variables like gender, age and level of education are factors that are decisive regarding awareness to DNA and how their awareness plays an important role in building trust to donate their DNA data, as well as try to address the staggering questions pertaining to Big Data, DNA and Public Policy.

Watch the full seminar here:

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Citation:

Hasan Q, Sahoo S (2022). The Role of Awareness in DNA Data Sharing and Public Opinion in India — Challenges Observed. A part of the Engagement & Society Research Seminar Webinar Series. 30 March. Online