Socialising the Genome: Genomics, Communications and Public Trust

Professor Anna Middleton, Founder and Head of Society and Ethics Research, and Dr Vivienne Parry OBE, Head of Public Engagement, Genomics England, delivered this Public Policy Projects webinar to a global audience of over 200 people, including ambassadors involved in the concurrent G20 meeting.
15th June 2021

Webinar synopsis:

We know from the important survey conducted by Professor Anna Middleton, “Your DNA, Your Say”, that this is not a challenge faced by the UK alone. That survey, which covers more than 20 jurisdictions, identified common trends globally. And whilst the UK may be focussed on how to bring the benefit of genome sequencing to our own diverse population, we know that we are not reaching everyone. If people are mistrustful this means, at best, that they will be reluctant to engage and, at worst, that they actively refuse to be involved. This will, in turn, drive less diversity in the data that can be harnessed which will further exacerbate health inequalities between different ethnic communities as not everyone will be able to access the benefits of genome sequencing equally. If we are to truly bring the benefit of genome sequencing to the world then we need to be able to speak the right language about what those benefits are.

Watch the the full presentation from Public Policy Projects's YouTube channel here:

Click here to open a new window to our Vimeo page, where a video of Anna and Vivienne's presentation can be downloaded.

Downloads:

Citation:

Middleton A, Parry V (2021). Socialising the Genome: Genomics, Communications and Public Trust. Invited speakers by the Public Policy Projects G20 Webinar event. 15 June. Online