Researchers outline the need to maintain public trust in use of health data for research
2nd August 2018
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“Anna Middleton, Head of the Society and Ethics Research Group, Connecting Science at the Wellcome Genome Campus in Cambridge, UK and a co-author of the study said:”Public trust in data science is essential for large scale initiatives like these to deliver on their promise to enable significant breakthroughs in our understanding of human disease.”
Middleton also chairs the GA4GH Participant Values Task Team, which is currently leading a project to gather public attitudes towards genomic data sharing via the online survey,YourDNA, Your Say.”
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