From Your DNA, Your Say

Genomic data sharing requires public trust

A summary of the AJHG paper on the meta data analysis of publics' willingness to donate their DNA data was published on the English language website of the Centre for Research Ethics & Bioethics at Uppsala University, Sweden

CATALOGUED UNDER:
Project: Your DNA, Your SayType: Impact Awareness of Our Work (blogs, podcasts, etc)Contributors: Anna MiddletonRichard MilneKeywords: genomic dataGlobal Alliance for Genomics and Health (GA4GH)SwedentrustUppsala

Genomic data sharing requires public trust

18th September 2020

Excerpt from article:

Genomics research relies on the ability for clinicians, and researchers to share genetic data with each other across the world. The largest ever survey on global public attitudes towards genomic research and data sharing was just published in American Journal of Human Genetics. Lack of trust in who data is shared with could significantly hinder genomic research. With less than half of the respondents saying they would be happy for their genetic information to be shared for more than one purpose, the results send a call to action for the genomic research community to build public trust.

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Citation:

Centre for Research Ethics & Bioethics (CRB), Uppsala University, (2020) Genomic data sharing requires public trust. [online] 18th September. Available at: https://www.crb.uu.se/news/item/?tarContentId=894190 [Accessed: 30 October 2020]

 

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