Your DNA, Your Say
A new deal on data - articulating the contract between science and people
Excerpt from article:
The conversation needs to focus on how science and humanity collaborate and win, together.
Today Anna Middleton (Wellcome Genome Campus Society and Ethics Research), Vivienne Parry (Head of Engagement, Genomics England), and Julian Borra (Citizen, Founder of Thin Air Factory, London) have launched a manifesto asking for a people-powered conversation around the collection, storage and use of biomedical data, so that the journey of human discovery can be pursued collectively and democratically.
Middleton, A; Perry V; Borra, J (2018). Articulating the contract between science and people: DNA data sharing. [Blog] GenomEthics. Available at: https://genomethicsblog.org/2018/06/20/articulating-the-contract-between... 27 June 2018].