The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation

How do Costa Ricans view genomic data sharing? How willing are they to share data, and who do they trust? Henriette Raventós and Gabriela Chavarría-Soley, leads on the Costa Rican/Latin American arm of the Your DNA, Your Say study, explored these questions in this webinar.
12th January 2022

We were honoured to host Gabriela Chavarría-Soley and Henriette Raventós for the fifth installment of our SER Seminar Series focusing on findings from the Your DNA, Your Say study

The Your DNA, Your Say global survey explores the attitudes of individuals regarding genomic data sharing for research, which allows comparisons on how these views vary between regions of the world and countries. Gabriela Chavarría-Soley and Henriette Raventós are researchers at the University of Costa Rica.  Their work has focused on identifying genetic risk variants for severe mental disorders in Costa Rica. In this seminar, they describe their two-decade experience with participants in genetic studies in light of the Your DNA, Your Say results for the country. They focus on how the willingness to share genomic data depends on the later use of the data, and on who the most trusted persons with this information are. Preliminary patterns seen in Latin American countries as a group are also discussed. Additionally, they present recent qualitative results regarding beliefs and practices in the area of genetics of mental disorders in a group of social actors in Costa Rica. The implication of these findings for the historical underrepresentation of Latin populations in genomic studies is also discussed.

Watch the full seminar here:

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Citation:

Chavarría-Soley G, Raventós H (2022). The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation. A part of the Engagement & Society Research Seminar Webinar Series. 12 January. Online