From

Genetic Counselling & Nursing

Prioritising Participation: Your Genome, Your Research Agenda

Anna was a part of a group of social scientists who put on this engagement event for patient participants of the 100k Genome Participant at the Wellcome Trust in London
Catalogued under:
Project Genetic Counselling & Nursing
Type Presentations, Conferences & Public Engagement
Contributors Anna Middleton
Keywords invited conferencepatient voicesNHS100k Genomescommunicationconsentincidental findings (IFs)
29th September 2016

Excerpt from presentation:

WHY ARE WE HERE?

• To hear experiences, from a patient perspective

• To decide together, what the most important research questions should be in the future

• To end with a list of research questions to take forward

Downloads:

  • PDF of power point presentation (pdf)
  • PDF of Connecting Science blog coverage of the event (pdf)

    • Related Link:

  • https://connectingscience.wellcomegenomecampus.org/what-we-do/society-and-ethics-research/genome-research-agenda/

    • Citation:

    Middleton A (2016) Prioritising Participation: Your Genome, Your Research Agenda. Introduction to Participant GeCIP for Social Science and Ethics. Wellcome Trust, 29th September, London