Excerpt from presentation:
WHY ARE WE HERE?
• To hear experiences, from a patient perspective
• To decide together, what the most important research questions should be in the future
• To end with a list of research questions to take forward
Middleton A (2016) Prioritising Participation: Your Genome, Your Research Agenda. Introduction to Participant GeCIP for Social Science and Ethics. Wellcome Trust, 29th September, London