Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research

18th February 2014

This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings from whole genome studies. This involved recruiting members of the public, genetic health professionals, genomic researchers and non-genetic health professionals. A novel survey was designed that contained ten integrated films; this was made available online and open for completion by anyone worldwide. The recruitment methods are described together with the convenience and snowballing sampling framework. The most successful strategy involved the utilisation of social media; Facebook, Blogging, Twitter, LinkedIn and Google Ads led to the ascertainment of over 75 % of the final sample. We conclude that the strategies used were successful in recruiting in eclectic mix of appropriate participants. Design of the survey and results from the study are presented separately.

• Middleton A, Bragin E, Parker M on behalf of the DDD Study (2014) Finding people who will tell you their thoughts on genomics –

Middleton A, Bragin E, Parker M on behalf of the DDD Study (2014) Finding people who will tell you their thoughts on genomics – recruitment strategies for social sciences research. Journal of Community Genetics, vol. 5, pp 291-302

Available at https://doi.org/10.1007/s12687-014-0184-2