Empirical Research on the Ethics of Genomic Research

27th June 2013

“Genome-wide research that explores the genetic basis of a specific phenotype has the potential to incidentally uncover data relating to other existing and potential future phenotypes. It is vitally impor- tant to explore the ethical implications of these technologies and understand how research participants, lay members of the public, genomic researchers and health professionals wish to utilize this new information. We describe a new study to gather large-scale empirical data on what genetic results should be shared with research participants taking part in whole genome research.”

• Middleton A, Parker M, Wright CF, Bragin E, Hurles M on behalf of the DDD Study (2013) Empirical Research on the Ethics of Genom

Middleton A, Parker M, Wright CF, Bragin E, Hurles M on behalf of the DDD Study (2013) Empirical Research on the Ethics of Genomic Research. American Journal Medical Genetics Part A, vol. 161, issue 8, pp 2099–2101, August

Available at https://doi.org/10.1002/ajmg.a.36067