Attitudes of deaf people and their families towards issues surrounding genetics

Anna was invited to write this chapter for the book "Genes, Hearing and Deafness.  From Molecular Biology to Clinical Practice"
1st January 2007

Chapter Introduction:

"Genetic health services in general could be improved with more insight into the particular concerns and fears of patients with different genetic conditions. Previous research has documented the lay understanding of genetics and has looked at case-study discussion of the experiene of living with a genetic disorder. However, more research is needed to fully explore the experience and specific demands that deaf patients and their families have with respect to genetic issues.

This chapter provides an overview of some of the research that has been done to investigate the atitude of deaf people and their families towards genetics and genetic testing. Before this is covered, it is introduced with an overview of the different persecptives of deafness. This is followed by more practical sections on genetic testing services and what happens within genetic counselling. Then, a brief summary is given on the historical context to issues surrounding genetics, eugenics, and deaf people."

Book Summary:

The field of generic hearing impairment is one where rapid advances are taking place, and it can often be difficult for Audiologists to keep track of the broader picture. In this important new text the authors take a synoptic approach and summarize the causes and basis of hearing impairments, the impact on the individual and the therapies available, and the benefits and potential benefits of current developments.

Downloads:

Citation:

Middleton A (2007) Attitudes of deaf people and their families towards issues surrounding genetics. In: A Martini, D Stephens and AP Read (Eds). Genes, Hearing and Deafness. From Molecular Biology to Clinical Practice. London: Informa Healthcare, pp 163-172